Accessibility Or Luxury? It’s a Matter of Perspective.

July 9, 2019

mssinenomineblog

What if your luxury is my accessibility? What if the things you deem extras are essentials to me?

I am a disabled woman. To be more specific, I am both visibly (I am a non-ambulatory wheelchair user) and invisibly disabled (multiple disabilities which are not apparent by looking at me).

People routinely argue with, ignore and deny my accessibility needs for my visible and invisible disabilities. More importantly so do the politicians we elect, the governments they form and the experts they consult with and who I am forced to deal with because they are given gate-keeping and decision-making power over my life.

All of them keep several bingo cards worth of excuses on hand for why my or any other disabled person’s accessibility need(s) can’t be met.

The needs vary but the excuses rarely do.

I am also poor. This is not uncommon for disabled people, especially disabled women…

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A Simple Mental Health Pain Scale

November 11, 2018

The Graceful Patient

A good friend pointed out, after my last post on the importance of physical pain scale accuracy, that we lack decent ways to communicate our mental health pain scale.

Exactly like physical health, mental health pain is more about the level of distress it’s causing us than the injury itself. The reason we treat pain isn’t because it hurts. It’s because it’s distressing to us.

The brain doesn’t differentiate between physical pain and mental pain. In fact, this is a big reason why they try to get chronic pain patients to tackle existing mental health problems (whether they’re caused by the chronic health conditions or not). Central nervous system sensitisation can make us more sensitive to perceiving pain. Right now, we believe that chronic, severe pain doesn’t actually make us more tolerant to pain. It makes us less tolerant, and oversensitive to it.

You can imagine how well that goes…

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Foundational Self-Care. Let’s Get This Party Started!

August 10, 2018

When Old Comforts Bite.

May 19, 2018

Writers, this is an important post and I hope you consider it when writing characters that are very different from you in one or more ways.

About that Writing thing.

I’m anxious today and as is my habit I turned to an old fave audiobook for comfort. If you know me you probably already know that the Gunslinger is one of my favorite worlds and I put on the audiobook as done by one of my favorite narrators.

I started up the Drawing of the Three (*amazon affiliate links in the house) and for a while enjoyed it.

Until as with so many of Kings other books, somebody had to go on a nigger rant. In audio it’s fucked. There was another of the series I was listening to and it was a good solid five minutes of nigger nigger nigger and y’all. I took a deep breath and turned it off.

This is the type of moment when being a fan of color really fucking sucks. This is something a lot of fans, especially White fans just will never…

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Forced Intimacy: An Ableist Norm

August 30, 2017

So true to my experience and that of other people I know. I hope this inspires would-be allies to speak out against these intrusions on our boundaries, autonomy and basic dignity.

Leaving Evidence

Photo of my wheelchair in a dark room, silhouetted against a doorway, with a large shirt outlined in lights hanging against a dark wall.

“Forced Intimacy” is a term I have been using for years to refer to the common, daily experience of disabled people being expected to share personal parts of ourselves to survive in an ableist world. This often takes the form of being expected to share (very) personal information with able bodied people to get basic access, but it also includes forced physical intimacy, especially for those of us who need physical help that often requires touching of our bodies. Forced intimacy can also include the ways that disabled people have to build and sustain emotional intimacy and relationships with someone in order to get access—to get safe, appropriate and good access.

I have experienced forced intimacy my entire life as a disabled child, youth and adult…

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What Even Is SCLAB?

July 10, 2017

What Is Left to Say?

August 20, 2014

A must read for anyone concerned about social justice and the staggering level of oppression that still exists in our society.

tressiemc

In his 1934 essay, “A Negro Nation Within a Nation”, WEB DuBois wrote:

The colored people of America are coming to face the fact quite calmly that most white Americans do not like them, and are planning neither for their survival, nor for their definite future if it involves free, self-assertive modern manhood. This does not mean all Americans. A saving few are worried about the Negro problem; a still larger group are not ill-disposed, but they fear prevailing public opinion. The great mass of Americans are, however, merely representatives of average humanity. They muddle along with their own affairs and scarcely can be expected to take seriously the affairs of strangers or people whom they partly fear and partly despise.

For many years it was the theory of most Negro leaders that this attitude was the insensibility of ignorance and inexperience, that white America did not know of or…

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